I just called the pharmacy to re-order some more hydroxocobalamin. (It’s hydrox”O”… I previously spelled it hydrox”Y”. Just an FYI)
The pharmacist informed me that there’s a national shortage and they’re backordered for about two months. The company who either makes or sterilizes the vials messed something up. Not just for MY drug, but for many injectables.
I tried to keep my cool, but I was honestly… I don’t even know how to explain how I felt. “NO”. That’s the only word that came into my head. Just, “NO”. *Are you telling me we FINALLY found a treatment, and now it’s ALL GONE?!*
I wasn’t mean to her at all, but I kind of sputtered through my sentences. I didn’t know what to say. “So now… what am I… how… Okay well… ummmm…” I finally got enough out of my mouth for her to realize the girls were a little more of a serious case than the average hydroxocoalamin user. (If there’s such a thing as an “average” patient) Somewhere in my chopped up sentences I got out that it could be fatal if they stop using it and I asked if she knew of any pharmacy in the WORLD that had it in supply yet. *an overseas drug shipment… there goes MORE massive amounts of money…*
She stopped me and asked how much they needed. I said, “1 ML every day.” Some patients need it once a week, but most need it once a month.
She paused. “Hang on a second okay? I need to check something.”
Finally she comes back on. “Okay, I talked to someone above me. We have two vials in the back we can give you.” *OH thank you GOD!* I felt myself start breathing again. She went on and basically told me that because of the extreme shortage they saved a couple vials of every injectable that has been affected by this shortage for patients like the twins who don’t just need it, but NEED it. I practically threw my money at her (theoretically, since this conversation was over the phone). At this point I will personally drop kick anyone who tries to get these vials before me. I didn’t know if it was first come, first serve so I paid extra to just have it shipped immediately.
I now have two vials on their way to my little home in SE WI. My girls are safe for another few weeks. I feel so thankful my lucky stars were with me today. I know my babies aren’t the only ones who NEED this treatment, and I pray that everyone is able to get ahold of some, some way or another. In the meantime I need to find out what needs to be done to keep their treatment going. Who knows, I just may have to get some shipped from overseas if the shortage gets that bad.
Oh well, whatever it takes to keep my girls happy and healthy. Right?